Welcome to the SISTER Study Extension!
The SISTER Study Extension is open for enrollment to participants of the initial SISTER Study. This next phase of the study centers the longer-term social, emotional, spiritual, and physical effects of endometrial cancer among Black women after active treatment completion. We know the story doesn't end with the last radiation treatment or chemo cycle. It is imperative that we continue to document and amplify the experiences of Black women navigating the long-term effects of the disease so we can improve care for endometrial cancer patients in the future.
With the SISTER Study Extension, we hope to learn how the support you received from the SISTER Study (group or one-on-one support, or a care package) shapes different aspects of your life, and how your experience with endometrial cancer changes over time. This study continues to be co-created with Black women with endometrial cancer so we keep focused on what really matters.
What are the primary goals of the SISTER Study Extension?
- To understand the long-term trajectory of social isolation and loneliness for up to 5 years after EC active treatment.
- To understand physical and functional quality of life changes and treatment side effects over the long-term through formal survey data combined with electronic medical records data.
- To report the overall survival rate among Black women with high-risk EC on the SISTER Study using electronic medical record data and death certificate records.
Who Can Participate?
Participation is open to individuals who participated in the SISTER Study (enrolled between the years 2021 and 2025).
What activities are involved with my participation?
- Surveys: Once per year, around the time of your SISTER Study enrollment anniversary, you will be contacted by phone, email, or text from the SISTER Study team to complete a survey. This is a longitudinal study, meaning we plan to contact you every year for up to 5 years, or up to the 7th year after you enrolled in the original SISTER Study.
* You will receive a $50 gift card for each completed survey. - Medical Records: Each year, you will also be asked to complete an electronic medical records authorization from the institutions where you are receiving care related to your cancer diagnosis. There is a member of our team who is dedicated to supporting you through this process - Dr. Karen Scott (Scotty).
- Optional Interviews: We will reach out to a smaller group of participants who are interested in being part of long form interviews that help us understand your experiences further and the nuances that we cannot get from survey responses.
* You will receive a $100 gift card for each completed phone interview.
How can I join the SISTER Study Extension?
If you think you might be eligible for the SISTER Study Extension, check your email inbox or spam for an email from sisterstudy@uw.edu. You should have a personal link there that will take you to the enrollment page. If you think you are eligible but do not have an email from us, or if you have any questions or want to consent with the help of a research staff member, reach out to us using the contact information below:
Email: sisterstudy@uw.edu
Phone: 1-844-3-SISTER (1-844-374-7837)
* Please save our contact information so you know we are not spam callers.
If you have questions or want to consent with the help of a staff member, reach out by email or phone.